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Sunday 23 January 2011

Thought I would go with a bit of pink today....as I'm such a novice I don't know of any other way to jazz things up a bit....anyway its Sunday evening 21.04 to be exact...I've not been up to much....no energy..as per usual....be so very glad when spring comes.....I love spring not to hot....I don't do hot.....or cold come to that....so yeah stick to spring.....I'm going to add another interesting link....I hope you get something out of it...(that's if anyone reads this)  J


http://www.facebook.com/l.php?u=http%3A%2F%2Ffbshare.me%2FAZoho&h=1694c

XMRV / ME/ CFS: ME and me

XMRV / ME/ CFS: ME and me: "Hey I'm Jack I am 52 years old and I have suffered from the debilitating disease ME since I was 28. ME has taken the best years of my life, ..."

Friday 21 January 2011

ME and me

Hey I'm Jack I am 52 years old and I have suffered from the debilitating disease ME since I was 28. ME has taken the best years of my life, I don't want to sit back and see this happening to others, this "thing" has destroyed my life, and I can honestly say I am now alone....but for my wonderful friends in a wonderful group on Face Book...we are more than a group we are a family....We are all in the same/similar position you see....so we can understand what others do no...THAT IS ME/CFS IS REAL...we know we live it....I don't understand about Blogging or much else but we are all doing what we can to get help...I will now add some links that say a lot more than I am capable of...if only one person reads this it would have been worthwhile.


http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.wpinstitute.org%2Fxmrv%2Fdocs%2Fwpi_pressrel_100809.pdf&h=be2c7

http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.sciencemag.org%2Fcontent%2F326%2F5952%2F585.abstract%3Fkeytype%3Dref%26siteid%3Dsci%26ijkey%3Dm3wzKT4yJqEyk&h=be2c7


Thank you to everyone who has read and commented on my Blog.....a typical day for me today...couldn't get up until around 5 pm......and that was a struggle...had breakfast....no matter what time of day I get up I still have to have breakfast...I'm into sugar puffs at the moment....but before I fed me I fed my lovely understanding....puppy and cat...it's marvelous how they adapt...I think they are more understanding than a lot of humans I know....This next link is a very important one...anyone who could donate however little to the  WPI would be fantastic...these are the only people who are doing any real research into the link with ME/CFS and XMRV....they do it with no funding ..just donations....they are a wonderful family.....

http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.wpinstitute.org%2Fhelp%2Fhelp_donation.html&h=be2c7


If anyone has read this far...here are some Questions and answers from the WPI....I hope you find them interesting and helpfull.

http://www.google.co.uk/url?sa=t&source=web&cd=3&ved=0CCsQFjAC&url=http%3A%2F%2Fwww.wpinstitute.org%2Fxmrv%2Fxmrv_qa.html&ei=Tt05TZUNwYaFB4H7hOAK&usg=AFQjCNFF95MGhvX0iz9BZnEXeFoIVrB68Q&sig2=Eymo7iAe1rYxVrL4pr6L7w

Thankyou to everyone who read and commented on my blog....I am so chuffed...it's been a long day....it's 00.44 now and I'm done in....had loads of fun with my brilliant FB Family....as usual...I won't give you anything to read now as it's late....but be ready later.....thankyou again....lets get this message out there.